Edith Maxant – beloved cousin
I grew up blessed to have a fairly extensive family network. As with any family some were closer than other for a variety of reasons usually having to do with geography. One of my fonder early memories was visiting cousins in Ayer, Massachusetts – especially Cousin Edith. I was pretty young, I kind of knew …
Just In Case
I just spent the past week at Childrens Healthcare of Atlanta – Egleston on 5West (big shoutout to the great staff there!!) Katherine developed what we believe to be acute (rather than chronic) pancreatitis. And if that wasn’t enough to cause this poor kid enough insane pain to break my heart she also had a …
What right to flight?
As Good Morning America played in the background of our morning chaos yesterday, I quickly hit the record button on the TiVo. A parent and her toddler who is autistic were forced off an American Airlines flight. The mother took a train up to New York City to appear on the show. I’ve watched it …
Summertime Planning
I was checking in on some of my favorite blogs today in my spare time (yea right) and found this clever tip that I just had to share with all of you. I thought this was a brilliant idea to give visual cues to our kids on changes in routine! Why didn’t I think of …
Glasses for Children with Down Syndrome
I came across this on one of my listserv’s and thought it was useful information for some of you. Hello, my name is Maria Dellapina and I am writing to inform you about an opportunity to enhance the lives of the children we spend our lives advocating for. I am a mother of an nine-year-old …
Green the Vaccine March
Well I missed the interview in the summer chaos that is our home but found a write up on it on the Good Morning America/ABC News website. Jenny McCarthy and Jim Carrey were interviewed on Wednesday’s show before they took to the streets of Washington DC to March on Washington with several thousand supporters to …
Summertime….it’s Summertime
I can’t believe that time has gone by this quickly. Today is the second day of summer vacation in Georgia. I remember the good ole days when summer didn’t actually start until almost July…..of course then we didn’t start school until after Labor Day in September. But it’s just a different span until the kids …




