» Category Archives: Medical
How to Love Medical Records
A few years ago I wrote a piece about Medefile. As a matter fact it was probably one of the first pieces I did on this blog (January 2008). Medefile is a fee based service which helps gather medical records, digitize, organize and store them online – giving you access to these records 24/7/365, anytime, …
National Healthcare Reform and individuals with special needs
I was pleased to receive notice about a speech an amazing woman, Julie Beckett, gave recently to a group in Madison, WI (I am so going to have to get up there someday with the excuse of visiting my brother) Julie is mother to Katie, who contracted viral encephalitis when she was 6 months old. …
How did we get here?
Katherine’s pancreatitis continues to have long reaching complications. Not only has her way of life had to change, not only has her look changed from the drastic weight loss she has encountered, but her look is about to take yet another turn. Her GI who I love is telling us that Katherine needs a G-Tube …
Just In Case
I just spent the past week at Childrens Healthcare of Atlanta – Egleston on 5West (big shoutout to the great staff there!!) Katherine developed what we believe to be acute (rather than chronic) pancreatitis. And if that wasn’t enough to cause this poor kid enough insane pain to break my heart she also had a …
Glasses for Children with Down Syndrome
I came across this on one of my listserv’s and thought it was useful information for some of you. Hello, my name is Maria Dellapina and I am writing to inform you about an opportunity to enhance the lives of the children we spend our lives advocating for. I am a mother of an nine-year-old …
Caregiver Stress and 5 minutes
As parents of special needs kids, no matter the age, many of us do far more care tasks than we might otherwise with a child of the same age. Whether it’s because your child has physical limitations or intellectual limitations it’s really immaterial. The reality is that sometimes the toll of this care sneaks up …
Good things come to those who wait….
Well ain’t that the truth! We’re in the clear on the kidney. Apparently what was seen on the ultrasound was some kind of shadow or something and her kidneys are FINE. The past week has been pretty amazing. The thought that there could be something really wrong rocked me to my core. It made me …
About The Special Parent
Originally written articles covering topics from early intervention to transition planning, resources, commentary and current events related to parenting special needs children by a mom with twenty years of experience.
Follow Us
My favorites
- Ability Path
- Able Play
- Blaze Sports
- BlogCatalog
Blogged- Children with Special Needs
- Easter Seals Autism Blog
- Heidi J. Moore
- Mark Biernath – Special Needs Attorney
- Parenting Special Needs Children
- People First of Henry County
- Resources for Children with Special Needs – RCSN
- Sammons Preston
- Special Olympics
- The World of Special Olympics
- Uniquely Gifted
- Unlock the Waiting Lists – Georgia
-