» Category Archives: Advocacy

Glee Stars lend their voice to End the Word!

May 24, 2011 Kyron No Comments
Spread the Word to End the Word

Glee…YES, I absolutely consider myself a GLEEK! Proudly, I hold up my fingers in the glorious *L* and count myself among they loyal losers People who haven’t watched Glee may think it’s about a bunch of teenagers in show choir at their local high school who just get slushies thrown in their face because like …

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Confronting cruel, shameful and rude behavior

May 18, 2011 Kyron 3 Comments
© Marie-Thérèse GUIHAL - Fotolia.com

Yesterday, when talking about Donovan’s IEP, I admitted that I avoid confrontation. Well I said I actively avoid situations involving confrontation. Frequently I wish I was more the person I was in my youth….ready to slay the dragons. Maybe moving out of New Jersey has softened me over the year. I think it’s why I …

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Postscript to Flying without an IEP

May 17, 2011 Kyron 2 Comments
IMG_0221

Yesterday was a complete whirlwind of activity. My husband and I had been discussing going without an IEP for weeks and feeling any number of feelings – ill, morose, crotchety, anxious, unconvinced, fearful, and overall just tense about the whole scenario. I can honestly say I just KNEW it was the wrong decision.  I do …

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ADAPT members arrested protesting proposed Medicaid cuts

May 4, 2011 Kyron 4 Comments

Bravery comes in all shapes and sizes. Sometimes its a firefighter running into a burning building that everyone else is running from. Sometimes it’s a mom who bravely holds down her child while a nurse sticks yet another needle into them, just because they know it’s needed. Sometimes its a person or a group of …

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God Bless Lora

May 2, 2011 Kyron 12 Comments

There’s rarely an opportunity that I’m at a loss for words. Today seems to be one of them. I received word late last night….while most everyone was reveling in the news that Osama Bin Laden had been found and killed, that a woman who had had such amazing respect and admiration for had passed away. The news …

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Pretty is as Pretty does

June 19, 2009 Kyron No Comments

This week and next we’re getting ready for Katherine’s participation in the Mr. & Miss Special Henry County Pageant. She’ll be competing in the teen division. We have the obligatory new dress and new peek-a-boo toe shoes (yup two pairs – thanks Zappos for having them on sale!). We had a *process* done to our …

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National Healthcare Reform and individuals with special needs

May 12, 2009 Kyron No Comments

I was pleased to receive notice about a speech an amazing woman, Julie Beckett, gave recently to a group in Madison, WI (I am so going to have to get up there someday with the excuse of visiting my brother) Julie is mother to Katie, who contracted viral encephalitis when she was 6 months old. …

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